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Avatar for ERIC young championsWho are we?

In December 2021, a group of 10 young people with different bowel and bladder conditions were recruited to a group called the ERIC Young Champions supported by the Participation People. These young people are between the ages of 11 to 18 and live all across England and Wales.

They applied to be Young Champions because they wanted to raise awareness of the conditions they had and make sure that other young people weren’t feeling alone.

Between December and March 2022, the Young Champions met online and worked on improving the information for young people on the ERIC website.

All the resources, blogs and videos linked below have been written, created or approved by them.

They hope that all children and young people will find something they relate to on this page. 

This project was generously funded by the James Tudor Foundation and by donations from ERIC supporters who contributed to our Christmas Appeal in 2019. 

Can I become a Young Champion?

We are looking for funding so that the group can keep going and more young people can join so watch this space. in the meantime, if you want to share your story/experience, please get in touch with Alina our Communications Manager via email or call 0117 3012107. 

In their own words 

Here's how the Young Champions manage day to day life and face challenges such as moving school, dealing with bedwetting and changing their stoma in their own words: 

What we wish other people knew (about bladder and bowel conditions)

Explaining my diagnosis - Emily's story of living with an overactive bladder and neurogenic bowel

Making the leap to secondary school

Explaining my condition - self catheterising

Explaining my condition - George's story of having primary enuresis (bedwetting)

Preparing for ileostomy surgery - Jake's story

The transition from Primary to Secondary school - by Owain

Helpful resources

Visual appointment planner (PDF) to fill in before and after a doctor/hospital appointment to make sure you ask all the questions you need and can prepare in advance (visual vision).

Appointment planner (PDF) to fill in before and after a doctor/hospital appointment to make sure you ask all the questions you need and can prepare in advance. 

My support circle (PDF) - An activity to fill in as a reminder that you are never on your own and have lots of people around you to support you and your needs.

Videos made by ERIC's Young Champions 

The following videos include a day in the life of having a stoma, making the transition from primary school to secondary, adjusting to life at university and why it's important to remember you're not alone:  

Huge thanks to all of ERIC's Young Champions for these resources facilitated by Participation People. This project was generously funded by the James Tudor Foundation and by donations from ERIC supporters who contributed to our Christmas Appeal in 2019.